
<p>Pick’s disease is a rare type of age-related dementia that affects the frontal lobes of the brain and causes speech problems like aphasia, behavior difficulties and eventually death. It was first described by Czech neurologist and psychiatrist Arnold Pick in 1892. In some older medical texts, Pick’s disease is used interchangeably with “frontotemporal dementia,” but in modern medicine, Pick’s disease is understood to be one of three very specific causes of frontotemporal dementia.</p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/what_is_picks_disease.jpg" alt="What is Pick's Disease?" class="wp-image-121079"/></figure></div>



<h2>Symptoms of Pick’s Disease</h2>



<p>Differentiating between types of dementia can be difficult for physicians. Alzheimer’s disease, the most common cause of dementia, can often be distinguished from frontal lobe dementia like Pick’s disease because memory loss is one of the first notable symptoms of Alzheimer’s. Frontal lobe dementia is not usually associated with memory loss in its early stages.<br>Pick’s disease is known especially for the aphasia it causes. This can distinguish it from other types of frontotemporal dementia, in which behavior problems and personality changes are often a primary first symptom. That said, Pick’s disease can also be associated with behavior problems. Determining with certainty whether a patient has Pick’s disease, another type of frontal lobe dementia, or an altogether different cause of aphasia, is not always possible.</p>



<h2>Symptoms of Pick’s disease include:</h2>



<h3>Speech Problems</h3>



<p>* Hesitant speech<br>* Difficulty articulating<br>* Stuttering<br>* Ungrammatical speech<br>* Difficulty recalling words or names</p>



<h3>Behavior Problems and Personality Changes</h3>



<p>* Unusual behavior<br>* Disinhibition<br>* Passivity<br>* Hyperactivity<br>* Anxiety<br>* Slovenly appearance<br>* Delusions and paranoia<br>* Lack of empathy</p>



<p>As Pick’s disease progresses to its later stages, the range of symptoms become increasingly noticeable and more severe. Gradually, nearly every aspect of cognition and daily functioning can be severely impaired.<br>Pick’s Disease and the Brain</p>



<p>Pick’s disease is caused by a buildup of tau proteins, called “Pick bodies,” in the brain. Pick bodies cause neurological damage in areas where they are present, which includes (but is not limited to) the frontal lobes.<br>Tau proteins also build up in the brains of Alzheimer’s patients, though, only one form of these tau proteins is prevalent in the brains of those with Pick’s disease. This difference allows Pick’s disease to be differentiated from Alzheimer’s disease postmortem by researchers and pathologists.<br>Pick’s Disease Treatment and Prognosis</p>



<p>Like Alzheimer’s disease, Pick’s disease is currently untreatable. “As far as I know, there are no successful interventions in the treatment of frontotemporal dementia,” dementia expert Howard Crystal, professor of neurology and pathology at New York Downstate Medical College, told Psychiatric Times.<br>While Pick’s disease cannot be slowed or stopped, medical professionals have had mixed success addressing specific symptoms of the disease. The goal is to maximize the functioning and comfort of those with Pick’s disease as much as possible.<br>Care for Seniors with Pick’s Disease</p>



<p>Pick’s disease can be an enormous challenge for caregivers. Patients with Pick’s disease may have personality changes so severe that their loved ones do not recognize them as the people they formerly were. As Pick’s disease progresses, patients become unable to complete activities of daily living, such as dressing, grooming and toileting. The combination of personality changes and inability to function can require caregivers to place loved ones with Pick’s disease into professional dementia care at residential communities.</p>


What is Pick’s Disease?

Pick’s disease is a rare type of age-related dementia that affects the frontal lobes of the brain and causes speech problems like aphasia and behavior difficulties. 


<p>Dementia care is daunting, but may not be as challenging as you would expect. Whether you care for a parent or senior loved one with Alzheimer’s disease or another type of dementia, or are a senior care professional approaching your role with some knowledge — the right attitude is crucial to success.</p>



<figure class="wp-block-image size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/Caring-for-Someone-With-Dementia-5-Fundamentals-768x404-1.jpg" alt="" class="wp-image-121083" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Caring-for-Someone-With-Dementia-5-Fundamentals-768x404-1.jpg 768w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Caring-for-Someone-With-Dementia-5-Fundamentals-768x404-1-290x153.jpg 290w" sizes="(max-width: 768px) 100vw, 768px" /></figure>



<p><a href="https://www.alzheimers.net/12-22-14-reminiscence-books-help-alzheimers">Educating yourself about dementia</a>&nbsp;and maintaining a positive but realistic attitude allows you to maintain an element of control as a caregiver. It can take the sting out of surprising challenges you encounter and also improve the care that you provide.</p>



<p>Here are some important facts to consider when approaching your role caring for someone with dementia:</p>



<h2>1. Accept support.</h2>



<p>Whether you are caregiving for someone in your family, or whether you provide care professionally, never be afraid to ask for help. Many family caregivers find&nbsp;<a href="https://www.alzheimers.net/best-alzheimers-support-groups">support groups</a>&nbsp;immensely helpful. Support groups allow caregivers to vent in a group setting with people who understand what one another is going through. It also allows caregivers to hear what is working for other caregivers and learn about&nbsp;<a href="https://www.alzheimers.net/resources/national-alzheimers-therapy-directory">local Alzheimer’s and dementia resources</a>. Similarly, professional caregivers shouldn’t be reluctant to ask a colleague for support when facing an exceptional challenge or difficult time. Caregiving for someone with dementia is not easy and there will certainly be moments when professional caregivers need a hand or someone to talk to.</p>



<h2>2. Actively empathize.</h2>



<p>Care starts with compassion and empathy. This holds true in all human&nbsp;relationships&nbsp;but may be especially salient for dementia caregivers. For example, people with dementia are prone to becoming confused about their whereabouts and even the time period in which they are living. For instance, imagine how you felt and would want to be treated if you suddenly found yourself disoriented in an unfamiliar place, not even sure of the year or even your own identity.</p>



<h2>3. Be a realistic caregiver.</h2>



<p>Be realistic about what constitutes success during the&nbsp;<a href="https://www.alzheimers.net/stages-of-alzheimers-disease/">progression of the disease</a>. Success is helping to assure that the person you are caring for is as comfortable, happy and safe as possible. Most experienced dementia caregivers will tell you that the person they care for has good days and bad days. Try your best to foster the good days and even the good moments for the person with dementia, don’t try to force them. Also, be realistic about the course of the disease. Remember that most types of dementia, including Alzheimer’s, are irreversible and progressive. Dementia will tend to get worse over time and there is no known cure. (A prominent exception is&nbsp;dementia&nbsp;induced by medications, which can be reversed when medications are withdrawn.)</p>



<h2>4. Dementia is more than memory loss.</h2>



<p>Memory loss is a classic dementia symptom. But some types of dementia, particularly&nbsp;<a href="https://www.alzheimers.net/frontal-lobe-dementia/">frontotemporal dementia and Pick’s disease</a>, manifest themselves as personality changes rather than memory loss. The symptoms depend on the areas of the brain that is affected by the disease. Even when memory loss is the most apparent symptom, the person with dementia is experiencing&nbsp;a neurological&nbsp;decline that can lead to a host of other issues. A patient may develop difficult behaviors and moods. For example, a prim and proper grandmother may begin to curse like a sailor. Or a formally trusting gentleman may come to believe that his family is plotting against him or experience other&nbsp;<a href="https://www.alzheimers.net/hallucinations-and-delusions">delusions and hallucinations</a>. In the latest stages of most types of dementia, patients become unable to attend to activities of daily living (such as dressing and toileting) independently. They may become non-communicative, unable to recognize loved ones and even unable to move about.</p>



<h2>5. Plan&nbsp;for the future.</h2>



<p>The only inevitable is change when you are caring for someone with dementia. Never get too used to the status quo. That means that family caregivers should&nbsp;<a href="https://www.alzheimers.net/2014-04-24-questions-to-ask-about-memory-care">prepare for a time when their loved one may need professional memory care</a>&nbsp;in a residential setting. This involves both financial planning and identifying the most appropriate care options in your area. Professional caregivers and memory care providers also need to plan ahead. They should be mindful to continually reassess the care needs and health status of clients and residents with dementia. Remember that care needs will inevitably increase and plan ahead for any transitions that the resident may require in the future, such as a move to a skilled nursing provider or hospice care.</p>


Caring for Someone With Dementia: 5 Fundamentals

Dementia care is a daunting task, but may not be as challenging as you expect. 

Caring for Someone With Dementia


<p><em>From the organizations that raise money to fund research the the laboratories where this research is done, here are some of the best links related to Alzheimer’s research. Many of these centers have focus on understanding specific aspects of Alzheimer’s disease and related disorders, while other centers have more comprehensive approach.</em></p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Research-Centers-300x179-1.jpg" alt="" class="wp-image-121081" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Research-Centers-300x179-1.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Research-Centers-300x179-1-290x173.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure></div>



<p>These organizations and research centers will play a crucial role if we able to&nbsp;<a href="https://www.usagainstalzheimers.org/press/hhs-announces-key-milestones-national-plan-address-alzheimer%E2%80%99s-disease-2025">cure Alzheimer’s by 2025</a>, which was the very ambitious goal set by Kathleen Sebelius and the Department of Health under the leadership of President Obama.</p>



<h2>Organizations Raising Money for Alzheimer’s Research</h2>



<ul><li><a href="https://www.alzdiscovery.org/">Alzheimer’s Drug Discovery Foundation<br></a>A foundation focused on pharmacological strategies to prevent or cure Alzheimer’s disease</li><li><a href="https://alzfdn.org/">The Alzheimer’s Foundation of America<br></a>A nonprofit foundation dedicated to fighting Alzheimer’s and supporting patients</li><li><a href="https://www.alz.org/research/for_researchers/grants">The Alzheimer’s Association International Research Grant Program<br></a>The grant-giving arm of the Alzheimer’s Association</li><li><a href="http://banneralz.org/">Banner Alzheimer’s Initiative<br></a>A leading institute for Alzheimer’s and dementia advocacy and research</li><li><a href="http://www.cartfund.org/">Coins for Alzheimer’s Research</a><br>“Beginning in 1996 with Rotarians voluntarily emptying their pockets and purses of changes at weekly meetings, Coins for Alzheimer’s Research Trust aims to collect and provide dollars for leading-edge research for the cure and prevention of Alzheimer’s disease.”</li><li><a href="https://curealz.org/">Cure Alzheimer’s Fund</a></li><li>A nonprofit that helps to fund cutting-edge research related to the diagnosis and treatment of Alzheimer’s and similar types of dementia</li><li><a href="https://www.alzheimers.org.uk/research?categoryID=200422">Alzheimer’s Society</a>&nbsp;(UK)<br>Dedicated to defeating dementia through research. We fund research into the cause, cure, care and prevention of dementia, including Alzheimer’s disease.”</li><li><a href="https://www.alzinfo.org/">Fisher Center for Alzheimer’s Research</a><br>“Our team of internationally&nbsp;renowned scientists, under the direction of Nobel laureate Dr. Paul Greengard, has been at the forefront of seminal research that has provided a conceptual framework for modern day investigations into Alzheimer’s disease.”</li><li><a href="https://geoffreybeenefoundation.com/alzheimers-initiative/">Geoffrey Beene Foundation Alzheimer’s Initiative<br></a>The Beene Alzheimer’s Initiative has donated nearly $5 million for Alzheimer’s research, focusing much of their philanthropic giving on early detection of memory disorders.</li></ul>



<h2>Alzheimer’s and Dementia Research Centers</h2>



<p>While these centers may be exploring many avenues of research, we’ve grouped them based on their focuses:</p>



<p><strong>National Alzheimer’s Centers</strong></p>



<ul><li><a href="http://www.alz.washington.edu/">National Alzheimer’s Coordinating Center (NACC)</a><br>“The Center coordinates data collection and fosters collaborative research among Alzheimer’s Disease Centers.”</li><li><a href="http://www.adcs.org/">Alzheimer’s Disease Cooperative Study (ADCS)<br></a>ADCS conducts clinical trials on promising compounds designed to improve cognitive functioning, slow the rate of decline, or delay the onset of Alzheimer’s disease.” A New Yorker article explains the study is looking specifically at Amyloid clearing drugs.</li><li><a href="http://ncrad.iu.edu/">National Cell Repository for Alzheimer’s Disease (NCRAD)<br></a>The Repository maintains a database of family histories and medical records and provides genetic researchers with cell lines and/or DNA samples.”</li></ul>



<p><strong>Centers Researching Alzheimer’s Neuroimaging</strong></p>



<ul><li><a href="http://www.alzresearch.org/">John’s Hopkins School of Medicine Alzheimer’s Disease Research Center<br></a>John’s Hopkins Researchers are conducting numerous studies, including anti-amyloid therapy for Alzheimer’s disease. They are also researching the role of other brain chemicals in the formation of Alzheimer’s disease, such as tau,&nbsp;nicastrin and gamma secretase.</li><li><a href="https://www.mayo.edu/research/centers-programs/alzheimers-disease-research-center">Mayo Clinical Alzheimer’s Disease Research Center<br></a>Mayo Clinic researchers are studying using neuroimaging, such as PET Scans, to diagnose Alzheimer’s disease.</li><li><a href="https://pennmemorycenter.org/research/">University of Pennsylvania Alzheimer’s Disease Center<br></a>Among other avenues of investigation, this center is also studying promising diagnostic possibilities of brain imaging.</li></ul>



<p><strong>Research Centers Researching Genetics of Alzheimer’s</strong></p>



<ul><li><a href="https://medicine.yale.edu/psychiatry/alzheimers/index.aspx">Yale University Alzheimer’s Disease Research Unit<br></a>Research is focused on genetic aspects of Alzheimer’s disease, in addition to new neuroimaging strategies.</li><li><a href="https://icahn.mssm.edu/research/adrc">Mount Sinai School of Medicine Alzheimer’s Disease Research Center<br></a>Researchers are doing fascinating research into the genetic aspect of Alzheimer’s, and possible corresponding therapies. Some of their latest&nbsp;research “identifies potential therapeutic targets for Late Onset Alzheimer’s Disease (LOAD) by revealing a network of genes involved in the inflammatory response.”<a href="http://www.kualzheimer.org/">University of Kansas Alzheimer’s Disease Center<br></a>The center “emphasizes the research areas of Mitochondrial Genomics, Metabolism and neuroimaging.”</li><li><a href="http://columbianeuroresearch.org/taub/">The Taub Institute for Research on Alzheimer’s Disease and the Aging Brain<br></a>Columbia University’s Alzheimer’s and dementia research center practice what they call “translational research.” Their website explains, “Translational research is an innovative approach to medical research that bridges the gap between basic science and clinical application to accelerate the development of new therapies.”</li></ul>



<p><strong>Research Centers Focusing on Diagnosis and Early Detection of Alzheimer’s</strong></p>



<ul><li><a href="https://www.adrc.wisc.edu/">University of Wisconsin Alzheimer’s Disease Center<br></a>The center conducts a wide variety of research, including studying the possible diagnosis of Alzheimer’s disease with spinal column fluid.</li><li><a href="http://www.bu.edu/alzresearch/">Boston University Alzheimer’s Disease Center<br></a>Research ranges from attempts to develop a blood test for the detection of Alzheimer’s disease, to the use of an anti-body called&nbsp;Gantenerumab in Alzheimer’s disease treatment.</li><li><a href="http://azalz.org/">Arizona Alzheimer’s Disease Center/Sun Health Research Institute<br></a>Much of the Arizona center’s research focus is on early detection of Alzheimer’s disease.</li><li><a href="https://www.ohsu.edu/xd/health/services/brain/getting-treatment/diagnosis/alzheimers-aging-dementia/research/index.cfm">Oregon Health and Science University Aging and Alzheimer’s Disease Center<br></a>A focus of this center is the early diagnosis of Alzheimer’s disease, “demonstrating for the first time that there are structural as well as cognitive changes that can be detected in the brain years before memory problems are evident.”</li></ul>



<p><strong>Research Centers Studying Alzheimer’s Prevention and Causes of Alzheimer’s</strong></p>



<ul><li><a href="https://www.mind.uci.edu/">University of California – Irvine, Alzheimer’s Disease Research Center<br></a>The center’s research extends towards nutritional factors associated with brain health, including the study of Omega-3 fatty acid.</li><li><a href="https://knightadrc.wustl.edu/">Washington University at St. Louis. Alzheimer’s Disease Research Center<br></a>Research center studying “causal factors” linked to Alzheimer’s disease.</li><li><a href="http://depts.washington.edu/mbwc/adrc/">University of Washington Alzheimer’s Research Center<br></a>The center’s focus is to&nbsp;investigate “the basic biological processes underlying Alzheimer’s disease and related memory disorders.”</li><li><a href="http://alzheimers.emory.edu/">Emory University Alzheimer’s Disease Center<br></a>Emory University researchers are investigating Alzheimer’s on a number of fronts. One area of research involves learning more about the role of&nbsp;<a href="https://en.wikipedia.org/wiki/Tau_protein">Tau-proteins</a>&nbsp;in the development of the disease.</li><li><a href="https://www.utsouthwestern.edu/education/medical-school/departments/neurology/programs/alzheimers-disease-center/">University of Texas, Southwestern Medical Center<br></a>Researchers in Texas are exploring whether free radicals in the brain may contribute to Alzheimer’s disease.</li></ul>



<p><strong>Centers with Other Avenues of Research or Comprehensive Research Strategies</strong> </p>



<ul><li><a href="http://www.adrc.pitt.edu/">University of Pittsburgh Alzheimer’s Disease Research<br></a>The center is currently researching medication to reduce agitation in people with Alzheimer’s disease and other disorders.</li><li><a href="https://med.nyu.edu/departments-institutes/neurology/divisions-centers/center-cognitive-neurology/alzheimers-disease-center">New York University Center of Excellence on Brain Aging<br></a>The center is proud of its “comprehensive” or all-of-the-above approach to investigating Alzheimer’s disease and related kinds of dementia</li><li><a href="https://www.madrc.org/">Massachusetts General Hospital/Harvard Medical School Alzheimer’s Disease Research Center<br></a>The center is currently conducting a wide variety of clinical trials, including on investigating how Tau-proteins are related to Alzheimer’s disease.</li></ul>



<p><strong>Other Alzheimer’s Research Centers</strong></p>



<ul><li><a href="https://medicine.iu.edu/research/centers-institutes/alzheimers/">Indiana University Alzheimer Disease Center</a></li><li><a href="https://www.brain.northwestern.edu/">Northwestern University Cognitive Neurology and Alzheimer’s Disease Center</a></li><li><a href="https://www.rush.edu/services/memory-clinic">Rush University Medical Center Alzheimer’s Disease Center</a></li><li><a href="https://health.ucdavis.edu/alzheimers/">University of California – Davis, Alzheimer’s Disease Center</a></li><li><a href="http://www.uky.edu/coa/adc">University of Kentucky Alzheimer’s Disease Center</a></li></ul>


Alzheimer’s Research Centers & Organizations

Find and learn about Alzheimer’s research centers and organizations that support Alzheimer’s research. 

Alzheimer’s Research Organizations


<h2>Best Alzheimer’s Products</h2>



<p><a href="http://www.best-alzheimers-products.com/">www.best-alzheimers-products.com<br></a>At Best Alzheimer’s Products, we are striving to make life better for people living with Alzheimer’s disease and other forms of dementia.</p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/directry-of-national-alzheimers-resources.jpg" alt="" class="wp-image-121085" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/directry-of-national-alzheimers-resources.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/directry-of-national-alzheimers-resources-290x192.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure></div>



<h2>The Alzheimer’s Store</h2>



<p><a href="http://www.alzstore.com/">www.alzstore.com</a></p>



<p>“The Alzheimer’s Store is the #1 resource for therapy products and education to the Dementia and Alzheimer’s communities. Our products are specifically designed for people with Alzheimer’s and Dementia and their caregivers.”</p>



<h2>The Alzheimer’s Caregiver</h2>



<p><a href="http://www.thealzheimerscaregiver.com/">www.thealzheimerscaregiver.com</a></p>



<p>“Our caregiver education modules connect you to over 2,000 pages of the most recent scientific research on dementia and Alzheimer’s, translated into everyday language that is easy to understand and implement into caring for Alzheimer’s patients.”</p>



<h2>Cognitive Vitality</h2>



<p><a href="http://www.cognitivevitality.org/">www.cognitivevitality.org</a></p>



<p>Empowering you to protect your aging brain through clear and credible explanations of the science for and against the treatments that have been suggested to protect against Alzheimer’s disease and cognitive aging.&nbsp; Cognitive Vitality is brought to you by the Alzheimer’s Drug Discovery Foundation (<a href="http://www.alzdiscovery.org/">www.alzdiscovery.org</a>).</p>



<h2>Mind Design Games</h2>



<p><a href="http://www.minddesigngames.com/">www.minddesigngames.com</a></p>



<p>Mind Design Games was designed by caregivers to offer continuous, frustration-free, successful exercises for five critical aspects of dementia.</p>



<h2>Music &amp; Memory</h2>



<p><a href="http://www.musicandmemory.org/">www.musicandmemory.org</a><br>Music &amp; Memory is a non-profit organization that brings personalized music into the lives of the elderly or infirm through digital music technology, vastly improving quality of life.</p>



<h2>Puzzles to Remember</h2>



<p><a href="http://www.puzzlestoremember.com/">www.puzzlestoremember.com<br></a>Puzzles to Remember is a 501(c)3 organization that provides puzzles to nursing homes, veterans facilities, and other facilities that care for Alzheimer’s and dementia patients</p>



<h2>The Alzheimer’s Caregiver</h2>



<p><a href="http://www.thealzheimerscaregiver.com/">www.thealzheimerscaregiver.com<br></a>Our caregiver education modules connect you to over 2,000 pages of the most recent scientific research on dementia and Alzheimer’s, translated into everyday language that is easy to understand and implement into caring for Alzheimer’s patients.</p>



<h2>The Alzheimer’s Store</h2>



<p><a href="http://www.alzstore.com/">www.alzstore.com<br></a>The Alzheimer’s Store is the #1 resource for therapy products and education to the Dementia and Alzheimer’s communities. Our products are specifically designed for people with Alzheimer’s and Dementia and their Caregivers.</p>



<h2>Journal of Alzheimer’s Disease</h2>



<p><a href="http://www.j-alz.com/">www.j-alz.com</a></p>



<p>The Journal of Alzheimer’s Disease is an international multidisciplinary journal to facilitate progress in understanding the etiology, pathogenesis, epidemiology, genetics, behavior, treatment and psychology of Alzheimer’s disease.</p>



<h2>Lewy Body Dementia (LBD)</h2>



<p><a href="http://lbda.org/">lbda.org</a></p>



<p>LBD is not a rare disease. It affects an estimated 1.3 million individuals and their families in the United States, but many doctors or other medical professionals still are not familiar with LBD.</p>



<h2>&nbsp;The SAGE Test</h2>



<p><a href="http://medicalcenter.osu.edu/patientcare/healthcare_services/alzheimers/sage-test/Pages/index.aspx">medicalcenter.osu.edu/patientcare/healthcare_services/alzheimers/sage-test/Pages/index.aspx</a></p>



<p>The Self-Administered Gerocognitive Exam (SAGE) is designed to detect early signs of cognitive, memory or thinking impairments.</p>



<h2>National Association for Home Care and Hospice</h2>



<p><a href="http://www.nahc.org/">www.nahc.org</a></p>



<p>The National Association for Home Care &amp; Hospice (NAHC) is a nonprofit organization that represents the nation’s 33,000 home care and hospice organizations.</p>



<h2>Hospice Directory</h2>



<p><a href="http://www.hospicedirectory.org/">www.hospicedirectory.org</a></p>



<p>“Hospice care offers comfort, compassion, and dignity to those with life-limiting illness. Hospice is a philosophy of coordinated care for patients and their loved ones.”</p>



<h2>Alzheimer’s Journey</h2>



<p><a href="http://alzjourney.com/">alzjourney.com</a></p>



<p>Blog of Alzheimer’s caregiver and writer, Ann Napoletan.</p>


Directory of National Alzheimer's and Dementia Resources

Directory of National Alzheimer’s Resources

Explore our directory of additional Alzheimer’s resources for caregivers and seniors. 


<p>A few decades ago, only a few medical specialists would have heard of Alzheimer’s disease. “Senility” was considered inevitable for anyone who lived long enough. But as understanding of the brain has grown, science has been able to identify and differentiate many causes of dementia. Alzheimer’s is the most common type of dementia, but other brain disorders can and do frequently cause dementia.</p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/the-different-types-of-dementia.jpg" alt="" class="wp-image-121086" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/the-different-types-of-dementia.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/the-different-types-of-dementia-290x173.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure></div>



<p>These types of dementia often present themselves with very similar symptoms. Even trained physicians may have a trouble determining for certain which type of dementia a patient has, and some people experience multiple types of dementia concurrently, which is called “mixed dementia.” That said, newly acquired knowledge and technologies are allowing doctors to diagnose and distinguish different types of dementias better than ever before.</p>



<p>Here are the four most prevalent forms of dementia.</p>



<h2>Alzheimer’s Disease</h2>



<p>Alzheimer’s disease is by far the most well-known and common type of dementia.</p>



<p><strong>Common symptoms:</strong></p>



<ul><li>Memory loss</li><li>Confusion</li><li>Difficulty communicating</li><li>Anxiousness</li><li>Paranoia</li></ul>



<p><strong>Cause:&nbsp;</strong>The mechanisms behind Alzheimer’s disease aren’t well understood and there are competing hypothesis, but the most distinguishing feature of Alzheimer’s disease is the buildup of&nbsp;<a rel="noreferrer noopener" href="http://en.wikipedia.org/wiki/Amyloid_plaque" target="_blank">amyloid plaques</a>&nbsp;and&nbsp;<a rel="noreferrer noopener" href="http://en.wikipedia.org/wiki/Tau_tangle" target="_blank">tau tangles</a>&nbsp;in the brain. It’s widely believed that these brain changes are behind the disease.</p>



<p><strong>Treatments or therapies:&nbsp;</strong>There are many therapies, both pharmaceutical and non-chemical which can temporarily increase functioning and improve the spirits of the person with Alzheimer’s disease, but no treatment has proven to be effective. The Alzheimer’s Association says, “At this time there is no treatment to cure, delay or stop the progression of Alzheimer’s disease.”</p>



<p>The U.S. government has made Alzheimer’s research a high priority and set the optimistic goal of finding a cure by 2025. Vigorous research continues and numerous possible treatments are being investigated.</p>



<h2>Vascular Dementia</h2>



<p>Vascular dementia is also known as “multi-infarct dementia” or “post-stroke dementia” and is the second most common cause of dementia.</p>



<p><strong>Main symptoms:</strong></p>



<ul><li>Memory loss</li><li>Impaired judgment</li><li>Decrease ability to plan</li><li>Loss of motivation</li></ul>



<p><strong>Cause:&nbsp;</strong>Bleeding within the brain from a stroke cause brain damage.</p>



<p><strong>Treatments or therapies:&nbsp;</strong>Vascular dementia cannot be cured, but people who have the ailment are treated to prevent further brain injury from the underlying cause of the ailment. Like Alzheimer’s disease, numerous medication and therapies may be used to help manage the symptoms.</p>



<h2>Lewy Body Dementia</h2>



<p>Lewy body dementia is the third most common cause of dementia, and is also called “cortical Lewy body disease” or “diffuse Lewy body disease.”</p>



<p><strong>Main symptoms:</strong></p>



<ul><li>Sleep problems</li><li>Memory loss</li><li>Hallucinations</li><li>Frequent swings in alertness</li></ul>



<p><strong>Cause:&nbsp;</strong>Lewy bodies abnormal proteins that somehow appear in nerve cells and impair functioning.</p>



<p><strong>Treatments or therapies:&nbsp;</strong>There is no known treatment to reverse Lewy body dementia or address its underlying cellular cause, but as with Alzheimer’s and other the other main types of dementia, a wide array of therapies and treatment are used to improve the patient’s quality of live and alleviate symptoms.</p>



<h2>Frontotemporal Dementia</h2>



<p>Frontotemporal dementia is fairly rare, but believed to be the fourth most common type of dementia. Unlike the types of dementia discussed previously, frontotemporal dementia is marked more by behavioral and emotional changes than by cognitive impairment. In fact, memory is preserved in people with frontotemporal dementia.</p>



<p><strong>Main symptoms:</strong></p>



<ul><li>Decreased inhibition (frequently leading to inappropriate behavior)</li><li>Apathy and loss of motivation</li><li>Decreased empathy</li><li>Repetitive of compulsive behaviors</li><li>Anxiety and depression</li></ul>



<p><strong>Cause:&nbsp;</strong>Frontotemporal dementia occurs when the frontal or temporal lobes of the brain are damaged or shrink.</p>



<p><strong>Treatments or therapies:&nbsp;</strong>Frontotemporal dementia cannot be cured or reversed, but doctors will use medicines to treat uncomfortable or problematic symptoms.</p>



<h2>Other Causes of Dementia</h2>



<p>Just about any condition that causes damage to the brain or nerve cells can cause dementia. For example, people with&nbsp;<a rel="noreferrer noopener" href="http://www.aplaceformom.com/senior-care-resources/articles/parkinsons-disease-in-the-elderly" target="_blank">Parkinson’s disease</a>&nbsp;will often exhibit dementia in the later stages of their illness.&nbsp;<a rel="noreferrer noopener" href="http://en.wikipedia.org/wiki/Huntington's_disease" target="_blank">Huntington’s disease</a>,&nbsp;<a rel="noreferrer noopener" href="http://en.wikipedia.org/wiki/Creutzfeldt-Jacob_disease" target="_blank">Creutzfeldt-Jacob disease</a>&nbsp;and&nbsp;<a rel="noreferrer noopener" href="http://en.wikipedia.org/wiki/Alcoholic_dementia" target="_blank">alcoholism</a>&nbsp;can all lead to (currently) irreversible cognitive impairment.</p>


Different Types of Dementia

Learn about the various causes and symptoms of types of dementia. 


<p>Every person with Alzheimer’s experiences the disease differently, but people tend to experience a similar trajectory from the beginning of the illness to its end. The precise number of stages of Alzheimer’s is somewhat arbitrary. Some experts use a simple three-phase model (early, moderate and end), while others have found a granular breakdown to be a more useful aid to understanding the progression of the illness.</p>



<figure class="wp-block-image size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/What-Are-the-7-Stages-of-Alzheimers-Disease-768x404-1.jpg" alt="" class="wp-image-121087" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/What-Are-the-7-Stages-of-Alzheimers-Disease-768x404-1.jpg 768w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/What-Are-the-7-Stages-of-Alzheimers-Disease-768x404-1-290x153.jpg 290w" sizes="(max-width: 768px) 100vw, 768px" /></figure>



<p>The most common system, developed by&nbsp;<a href="https://nyulangone.org/doctors/1023155504/barry-reisberg" target="_blank" rel="noreferrer noopener">Dr. Barry Reisberg</a>&nbsp;of New York University, breaks the progression of Alzheimer’s disease into seven stages. This framework for understanding the progression of the disease has been adopted and used by a number of healthcare providers as well as the Alzheimer’s Association.</p>



<p>Here is a summary of the&nbsp;<a href="https://www.fhca.org/members/qi/clinadmin/global.pdf" target="_blank" rel="noreferrer noopener">seven stages of Alzheimer’s</a>&nbsp;based on Dr. Resiberg’s system:</p>



<h2>Stage 1: No Impairment</h2>



<p>During this stage, Alzheimer’s is not detectable and no memory problems or other symptoms of dementia are evident.</p>



<h2>Stage 2: Very Mild Decline</h2>



<p>The senior may notice minor memory problems or lose things around the house, although not to the point where the memory loss can easily be distinguished from normal age-related memory loss. The person will still do well on memory tests and the disease is unlikely to be detected by loved ones or physicians.</p>



<h2>Stage 3: Mild Decline</h2>



<p>At this stage, the family members and friends of the senior may begin to notice cognitive problems. Performance on memory tests are affected and physicians will be able to detect impaired cognitive function.</p>



<p>People in stage 3 will have difficulty in many areas including:</p>



<ul><li>Finding the right word during conversations</li><li>Organizing and planning</li><li>Remembering names of new acquaintances</li></ul>



<p>People with stage three Alzheimer’s may also frequently lose personal possessions, including valuables.</p>



<h2>Stage 4: Moderate Decline</h2>



<p>In stage four of Alzheimer’s,&nbsp;clear-cut symptoms of the disease are apparent. People with stage four of Alzheimer’s:</p>



<ul><li>Have difficulty with simple arithmetic</li><li>Have poor short-term memory (may not recall what they ate for breakfast, for example)</li><li>Inability to manage finance and pay bills</li><li>May forget details about their life histories</li></ul>



<h2>Stage 5: Moderately Severe Decline</h2>



<p>During the fifth stage of Alzheimer’s, people begin to need help with many day-to-day activities. People in stage five of the disease may experience:</p>



<ul><li>Difficulty dressing appropriately</li><li>Inability to recall simple details about themselves such as their own phone number</li><li>Significant confusion</li></ul>



<p>On the other hand, people in stage five maintain functionality. They typically can still bathe and toilet independently. They also usually still know their family members and some detail about their personal histories, especially their childhood and youth.</p>



<h2>Stage 6: Severe Decline</h2>



<p>People with the sixth stage of Alzheimer’s need constant supervision and frequently require professional care. Symptoms include:</p>



<ul><li>Confusion or unawareness of environment and surroundings</li><li>Inability to recognize faces except for the closest friends and relatives</li><li>Inability to remember most details of personal history</li><li>Loss of bladder and bowel control</li><li>Major personality changes and potential behavior problems</li><li>The need for assistance with activities of daily living such as toileting and bathing</li><li>Wandering</li></ul>



<h2>Stages 7: Very Severe Decline</h2>



<p>Stage seven is the final stage of Alzheimer’s. Because the disease is a terminal illness, people in stage seven are nearing death. In stage seven of the disease, people lose the ability to communicate or respond to their environment. While they may still be able to utter words and phrases, they have no insight into their condition and need assistance with all activities of daily living. In the final stages of&nbsp;Alzheimer’s, people may lose their ability to swallow.</p>


What Are the 7 Stages of Alzheimer’s Disease?

Learn about the stages of Alzheimer’s disease from the beginning to its end.

Stages of Alzheimer’s Disease


<h2>Making Sense of Guardianship</h2>



<p>Caregivers for people with Alzheimer’s disease often reach a point when they realize their loved one is unable to make rational or informed decisions. If their parent is cooperative and easy going, this incapacity may not be a problem. But if it’s coupled with a tendency to stubbornly refuse assistance or care, it can be dangerous. This is when guardianship can be an important tool for families. Guardianship also can be required when a person with Alzheimer’s or dementia is no longer able to legally sign power of attorney documents due to mental incapacitation.</p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/05/when-you-need-guardianship-for-a-parent-with-alzheimers.jpg" alt="" class="wp-image-121864" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/when-you-need-guardianship-for-a-parent-with-alzheimers.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/when-you-need-guardianship-for-a-parent-with-alzheimers-290x173.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure></div>



<p><em>Guardianship gives you the legal right to make decisions for a parent or loved one with Alzheimer’s or dementia. Guardianship is obtained through a court proceeding and granted by a judge.</em></p>



<h2>When Guardianship is Required</h2>



<p>The elderly parent who lives alone in an unsafe condition but who refuses assistance is an archetypal character in the world of the senior advocacy. For instance, imagine a senior named Elda who has Alzheimer’s disease:</p>



<p>Elda’s grown children became concerned because she’s living alone with Advanced Alzheimer’s. Elda recently left the stove on again and started a minor, but very smokey kitchen fire. Her children unplugged the oven, so she’s been eating generic goldfish crackers and Pepsi (refusing the meal delivery her children attempted to arrange). She has sundowners and often wanders the not-so-safe neighborhood at night looking for a corner-store that closed 20 years ago. She has lost $20,000 and counting to Nigerian email scammers. And she recently fell, bruising her hip badly after tripping on a box of old newspapers in her cluttered apartment. Her children know she’s a disaster waiting to happen.</p>



<p>If Elda continues to refuse assistance in this situation, the best option for her family would be to seek guardianship.</p>



<h2>Authorities of Guardians</h2>



<p>Guardians have the same sort of authority a parent has over minor child. With guardianship, families can assure that their loved ones who is mentally incapacitated due to Alzheimer’s disease and other types of dementia are:</p>



<ul><li>in a safe and dignified living situation</li><li>free from financial exploitation</li><li>able to receive necessary long-term caregiver</li><li>able to receive necessary medical care</li></ul>



<h2>How to Obtain Guardianship</h2>



<p>America is built on due process. Depriving an adult of his or her rights is no small thing, so these court proceedings assure guardianship is not abused. In the proceeding, the family member who is seeking guardianship (the petitioner) must provide evidence that the person with Alzheimer’s disease or dementia is incapacitated and proof of their own ability to be competent guardians</p>



<p>Determining whether the person with Alzheimer’s disease or dementia is competent is usually the easy part. A court psychologist will have typically made that determination before the hearing, although the petition can present additional evidence at the hearing.</p>



<p>But the bulk of the court proceeding is used to establish that the petitioner is an appropriate guardian. The Alzheimer’s Foundation notes:</p>



<p>“<em>The court scrutinizes all of the actions of the guardian, including the management of the individual’s personal financial affairs, and decisions regarding medical treatments and long-term care. Some states even require a potential guardian to take a court-approved class in order to learn about their responsibilities.”</em></p>



<p>People seeking guardianship need to demonstrate that there is care plan in place and will make appropriate use of their parent’s funds. If the court agrees that the petition would make an appropriate guardian and that the senior is genuinely incapacitated, guardianship is granted.</p>



<h2>Elder Attorneys</h2>



<p>If you are in a position where you may need to initiate guardianship proceeding, you should consult with an elder attorney if possible. Elder attorneys specialize in matters such as guardianship. That said, because this is similar to family law and a fairly simple proceeding it is not uncommon to seek guardianship without an attorney. If you do have to initiate a proceeding without an attorney, make sure to do in depth research online and at your local library so that you are able to navigate the proceedings effectively.</p>



<h2>Establishing Emergency Guardianship</h2>



<p>Though most people are experiencing mild to moderate impairment by the time they’re diagnosed with dementia, they’re also still typically capable of understanding their situation and making decisions. Even if your loved one hasn’t created an estate plan and power of attorney at the time of diagnosis, you likely still have time to work though the process and make a satisfactory care plan, including choosing health care and financial representatives.</p>



<p>However, there are a couple of cases where you may need to establish temporary or permanent legal guardianship as a first step. For instance, if:</p>



<p><strong>1. Your loved one is being financially exploited.&nbsp;</strong>According to Kim Boyer, founder of Boyer Law Group, this scenario unfortunately common. “Some predators are professional scam-artists,” she says. “They identify single, elderly people who are slightly impaired and have no family around. They then gain the victim’s trust, and get access to his or her funds.” In other cases, caregivers, whether family members or hired help, are themselves the perpetrators of financial abuse.<br><strong>2. Your loved one truly lacks the capacity to make his or her own decisions, and has not appointed anyone to do so in his or her place.&nbsp;</strong>This situation is more common when a relatively young person experiences a catastrophic event, such as a major accident or a stroke, than it is in the case of cognitive illness, but it does occasionally occur.</p>



<p>In either case, both a physician and the court will have to declare that the patient lacks the capacity to direct his or her own care. From there, gaining guardianship is a matter of showing that you’re fully willing and capable when it comes to acting in your loved ones best interest.</p>



<p>Outside of not having felonies or bankruptcies on your record, Boyer says that one of the most important considerations is whether or not you’ve been involved with the patient’s money in the recent past, and particularly whether you’ve made any questionable transactions. “If you want to be appointed someone’s guardian, one of the best things you can do for yourself is to stay completely away from their money,” she concludes, “No matter how you stack up on paper, the court will do its best to look at your actions.”</p>


How to Gain Guardianship for a Parent with Alzheimer’s

How to obtain guardianship for a loved one with Alzheimer’s disease.

Guardianship


<h2>Difference Between Alzheimer’s and Dementia</h2>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/Difference-Between-Alzheimer%E2%80%99s-and-Dementia.jpg" alt="" class="wp-image-121084"/></figure></div>



<p>Alzheimer’s disease and dementia are two terms that are often used interchangeably as many people believe that one means the other. In fact, the distinction between the two diseases often causes confusion on the behalf of caregivers, families and patients. Learn more about how the two diagnoses, while related, are remarkably different.</p>



<h2>What Is Alzheimer’s Disease?</h2>



<p>According to the Centers for Disease Control (CDC), Alzheimer’s disease is a common cause of dementia, causing as many as 50-70% of all dementia cases. In fact, Alzheimer’s is a very specific form of dementia. Symptoms of Alzheimer’s include confusion, impaired speech and thought.</p>



<p>Doctors use a variety of screenings to determine the cause of dementia, including blood tests, brain scans and mental status evaluations.</p>



<h2>What Is Dementia?</h2>



<p>Dementia is an umbrella term for a set of symptoms including impaired memory and thinking. It is a term that is often associated with the cognitive decline of aging. However, issues other than Alzheimer’s can cause dementia.</p>



<p>Other common causes of dementia are Creutzfeldt-Jakob disease, Huntington’s disease and Parkinson’s Disease.</p>



<h2>How Are They Different?</h2>



<p>When a person is diagnosed with dementia, they are being diagnosed with a set of symptoms. This is similar to someone who has a sore throat. Their throat is sore but it is not known what is causing that particular symptom. It could be allergies, a common cold or strep throat. Similarly, when someone has dementia they are experiencing symptoms without being told what is causing those symptoms.</p>



<p>Another major difference between the two is that Alzheimer’s is not a reversible disease. It is degenerative and incurable at this time. Some forms of dementia, such as a drug interaction or a vitamin deficiency, are actually reversible or temporary.</p>



<p>Once a cause of dementia is found, appropriate treatment and counseling can begin. Until a proper diagnosis is made, the best approach to any dementia is communication, engagement and loving care.</p>



<h2>The Need for More Public Awareness and Research Funding</h2>



<p>While the differences between Alzheimer’s and dementia are clear to families dealing with the diseases, more public awareness is needed to differentiate between the two.</p>



<p>Further understanding of what exactly causes Alzheimer’s will help to clear any confusion and hopefully lead to better treatments plans and, ultimately, a cure.</p>



<p><strong>Sources:</strong></p>



<ul><li><a rel="noreferrer noopener" href="http://www.livescience.com/32809-whats-the-difference-between-alzheimers-disease-and-dementia.html" target="_blank">Live Science</a></li><li><a rel="noreferrer noopener" href="https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/expert-answers/alzheimers-and-dementia-whats-the-difference/faq-20396861" target="_blank">Mayo Clinic</a></li></ul>


Difference Between Alzheimer’s and Dementia

Discover how Alzheimer’s and Dementia are remarkably different. 


<h2>2019 Alzheimer’s Statistics</h2>



<h3>Alzheimer’s Worldwide</h3>



<ul><li>Worldwide, nearly 50 million people have Alzheimer’s or related dementia. (Bright Focus Foundation)</li><li>Only 1-in-4 people with Alzheimer’s disease have been diagnosed. (Alzheimer’s Disease International)</li><li>Alzheimer’s and dementia is<strong>&nbsp;most common in Western Europe</strong>&nbsp;(North America is close behind).</li><li>Alzheimer’s is least prevalent in Sub-Saharan Africa.&nbsp;(Alzheimer’s Disease International)</li><li>Alzheimer’s and other dementias are the&nbsp;<strong>top cause of disabilities</strong>&nbsp;in later life. (Alzheimer’s Disease International)</li><li>68% of the projected increase in the global prevalence and burden of dementia by 2050 will take place in low and middle-income countries. (Alzheimer’s Association)</li></ul>



<h3>Alzheimer’s Care Costs</h3>



<ul><li>In 2018, Alzheimer’s and dementia care in the U.S. cost $277 billion.</li><li>In 2018, caregivers of people with Alzheimer’s or other dementias provided an estimated 18.5 billion hours of informal (that is, unpaid) assistance, a contribution to the nation valued at $233.9 billion.</li><li>The total lifetime cost of care for someone with dementia was estimated at $250,174 in 2018.</li><li>By 2050, costs associated with dementia could be as much as $1.1 trillion.</li></ul>



<h3>Alzheimer’s in the United States</h3>



<ul><li><strong>Alzheimer’s is the 6th leading cause of death</strong>&nbsp;in the United States.</li><li>Alzheimer’s is the&nbsp;<strong>only disease in the 10 leading causes of deaths in the United States that cannot be cured</strong>, prevented or slowed.</li><li><strong>1 in 10 Americans over the age of 65 has Alzheimer’s</strong>.</li><li>Between 2017 and 2025&nbsp;<strong>every state is expected to see at least a 14% rise in the prevalence of Alzheimer’s</strong>.</li><li>There was an&nbsp;<strong>89% increase in deaths due to Alzheimer’s</strong>&nbsp;between 2000 and 2014.</li><li>More than&nbsp;<strong>5 million Americans are living with Alzheimer’s</strong>.</li><li>By 2050, it’s&nbsp;<strong>estimated there will be as many as 16 million Americans</strong>&nbsp;living with Alzheimer’s.</li><li><strong>Every 66 seconds someone in the United States develops Alzheimer’s</strong>.</li><li><strong>1 in 3 seniors dies with some form of dementia.</strong></li><li>When the first wave of baby boomers reaches age 85 (in 2031), it is projected that&nbsp;<strong>more than 3 million people age 85 and older will have Alzheimer’s</strong>.</li><li><strong>One-third of Americans over age 85</strong>&nbsp;are afflicted with the illness.</li><li>Typical&nbsp;<strong>life expectancy after an Alzheimer’s diagnosis is&nbsp;4-to-8 years</strong>.</li><li>By 2025, the number of people aged 65 and older with Alzheimer’s disease is expected to reach 7.1 million people, a 27% increase from the 5.6 million age 65 and older in 2019.</li><li>By 2050, there could be&nbsp;<strong>as many as&nbsp;7 million&nbsp;people age 85 and older with Alzheimer’s disease</strong>, accounting for half (51%) of all people 65 and older with Alzheimer’s.</li><li><strong>Proportion of&nbsp;People With Alzheimer’s Disease in the United States&nbsp;by Age</strong>: 85+ years – 38%, &nbsp;75-84 years, 44%,&nbsp;65-74 years, 15%,&nbsp;&lt;65 years, 4%</li></ul>



<h3>Projected Number of People Age 65 and Older in the U.S. Population With Alzheimer’s Disease, 2010 to 2050:</h3>



<p><strong>2010</strong></p>



<p>Ages 65+: 4.7 Million</p>



<p><strong>2020</strong></p>



<p>Ages 65+: 5.8 Million</p>



<p><strong>2030</strong></p>



<p>Ages 65+: 8.4 Million</p>



<p><strong>2040</strong></p>



<p>Ages 65+: 11.6 Million</p>



<p><strong>2050</strong></p>



<p>Ages 65+: 13.8 Million</p>



<h3>Alzheimer’s Caregivers</h3>



<ul><li>Nearly&nbsp;<strong>one-fourth of Alzheimer’s and dementia caregivers are “sandwich generation” caregivers</strong>&nbsp;– caring for both someone with the disease and a child or grandchild.</li><li>More than 40% of family caregivers report that the emotional stress of their role is high or very high.</li><li>More than&nbsp;<strong>1 in 6 Alzheimer’s and dementia caregivers had to quit work entirely</strong>&nbsp;either to become a caregiver in the first place or because their caregiving duties became too burdensome.</li><li>74% of caregivers of people with Alzheimer’s disease and other dementias reported that they were “somewhat concerned” to “very concerned” about maintaining their health since becoming a caregiver.</li></ul>



<h3>Who Gets Alzheimer’s Disease?</h3>



<ul><li>2-in-3&nbsp; people with Alzheimer’s are women.</li><li>African and Hispanic Americans are more likely to develop Alzheimer’s than Caucasian&nbsp;Americans.</li><li><a href="https://www.alzheimers.net/resources/mississippi"><strong>Mississippi</strong></a><strong>&nbsp;has a higher rate of Alzheimer’s mortality</strong>&nbsp;than any other state at 45.8%.</li><li><strong>Alzheimer’s mortality is lowest in&nbsp;</strong><a href="https://www.alzheimers.net/resources/new-york"><strong>New York</strong></a>&nbsp;at 13.1%.</li><li>30% of people with Alzheimer’s also have heart disease, and 29% also have diabetes.</li></ul>



<p><strong>Sources:</strong></p>



<ul><li><a rel="noreferrer noopener" href="https://www.alz.org/facts/overview.asp" target="_blank">2018 Alzheimer’s Disease Facts and Figures</a></li><li><a rel="noreferrer noopener" href="https://www.cdc.gov/nchs/pressroom/sosmap/alzheimers_mortality/alzheimers_disease.htm" target="_blank">Centers for Disease Control</a></li><li><a rel="noreferrer noopener" href="https://www.alz.co.uk/research/world-report" target="_blank">World Alzheimer’s Report</a></li></ul>


Alzheimer’s Statistics

The most up to date numbers about Alzheimer’s and how it impacts people globally. 


<div class="wp-block-image"><figure class="aligncenter size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/05/2010.jpg" alt="" class="wp-image-121862" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/2010.jpg 800w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/2010-232x290.jpg 232w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/2010-768x960.jpg 768w" sizes="(max-width: 800px) 100vw, 800px" /></figure></div>



<p>Alzheimer’s disease is one of the fastest growing epidemics in the United States, yet it rarely gets the attention that cancer or heart disease receives. The&nbsp;<a href="https://www.alz.org/">Alzheimer’s Association</a>&nbsp;reports that the estimated progression rate of Alzheimer’s in the U.S. from 2000-2050 will increase by 193%, and unlike cancer and many types of heart disease, there is currently no cure for Alzheimer’s.</p>


The Forecast of Alzheimer’s By State

The Alzheimer’s Association reports that the estimated progression rate of Alzheimer’s in the U.S. from 2000-2050 will increase by 193%. 

Forecast of Alzheimer’s By State


<p>Alzheimer’s disease, which was first recognized and described in 1906 by researcher Alois Alzheimer, is the most common cause of dementia, and is highly prevalent in seniors. It’s a progressive brain disease that initially manifests itself as minor cognitive problems such as forgetfulness. Other symptoms of Alzheimer’s disease can include:</p>



<div class="wp-block-image"><figure class="alignright size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Sign-300x199-1.jpg" alt="" class="wp-image-121082" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Sign-300x199-1.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/Alzheimers-Sign-300x199-1-290x192.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure></div>



<ul><li>irritability</li><li>aggression</li><li>confusion</li><li>mood swings</li><li>speech trouble</li></ul>



<p>The minor cognitive problems that mark the early stages of the illness gradually become major cognitive problems during its mid-stages. In its late stages, patients lose their ability to perform key functions such as:</p>



<ul><li>swallowing</li><li>walking</li><li>eating</li><li>recognize their loved ones</li><li>controlling bladder and bowels</li></ul>



<p>Alzheimer’s disease is one cause of dementia, but there are others. Related dementias such as vascular dementia, Lewy body dementia, and frontotemporal dementia, have similar symptoms, trajectories, and outcomes.</p>



<p>It’s important to remember that Alzheimer’s is hard on family caregivers too. They often pay a high toll for their labor of love, reporting high levels of stress and sadness, and also increased health problems.</p>



<h2>An Alzheimer’s Diagnosis is Not the End</h2>



<p>Seniors who are diagnosed with Alzheimer’s or other progressive dementias &nbsp;typically live four to eight more years, although some people have lived for two decades or more with Alzheimer’s. While there is currently no cure for Alzheimer’s, there isn’t any reason patients with early to mid-stage Alzheimer’s should not enjoy a decent quality of life.</p>



<p>With the support of loving relatives, hardworking caregivers, competent physicians, and professional senior care providers, people with Alzheimer’s have the opportunity to enjoy many years of good living with their family and loved ones.</p>



<p>Alzheimer’s is managed with medicines as well as non-chemical approaches such as music therapy and reminiscence therapy.&nbsp; There are currently five FDA approved drugs that may slow the course of the illness. Physicians also prescribe other medicines to alleviate unpleasant symptoms and make the lives of patients and caregivers easier. More drugs are in the trial stage, some with very promising early results.</p>



<h2>Alzheimer’s and Dementia Care</h2>



<p>When Alzheimer’s is highly advanced, informal care by family caregivers is usually not sufficient. Alzheimer’s patients will usually eventually require dedicated memory care at an assisted living facility or nursing home with a memory care unit. These special care units aim to make Alzheimer’s sufferers as comfortable and content as possible while also keeping the residents safe from hazard such as wandering.</p>



<p>Memory care units for Alzheimer’s patients are often purpose-built to be warm and inviting. They frequently feature circular hallways so that residents can’t get lost. The staff is specially trained to effectively interact and care for seniors with Alzheimer’s disease. Even activities, dining programs, and enrichment opportunities are tailor made to be appropriate for people with Alzheimer’s or similar kinds of dementia.</p>



<p>Senior care referral services such as A Place for Mom can help families of Alzheimer’s patients identify care options that may be a good match for their family.</p>



<h2>A Cure for Alzheimer’s</h2>



<p>The Obama administration has set an ambitious goal of finding a cure for Alzheimer’s by 2030, and dedicated hundreds of millions of dollars to the task. Because the cost of Alzheimer’s is already so high, money spent on research is minuscule compared to the savings that would be realized if new and more effective treatments for Alzheimer’s are discovered.</p>



<p>Researchers working for universities, private companies, and governments across the world are also working at a frenetic pace to make Alzheimer’s a disease of the past. They’re investigating new drugs as well as reexamining old ones. For instance, researchers are now examining whether a long-known molecule found in the common plant Jimson weed may have value as a treatment for Alzheimer’s. Researchers are also working to find better ways to diagnose Alzheimer’s disease. It’s quite likely that if new treatments are to work, patients will need to be diagnosed as early as possible.</p>


What Is Alzheimer’s Disease?

Definitions and the latest research about Alzheimer’s Disease. 

What Is Alzheimer’s Disease


<p>Frontal lobe dementia, also known as frontotemporal dementia, is a form of dementia that occurs when the frontal lobes of the brain begin to shrink (or “atrophy”). Experts estimate that it is responsible for 10%-15% of dementia cases. Frontal lobe dementia has its own constellation of symptoms and is separate from Alzheimer’s disease, although there are cases when the symptoms of these disorders overlap.</p>



<div class="wp-block-image"><figure class="aligncenter size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/04/what-is-frontal-lobe-dementia.jpg" alt="" class="wp-image-121088" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/what-is-frontal-lobe-dementia.jpg 600w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/04/what-is-frontal-lobe-dementia-290x173.jpg 290w" sizes="(max-width: 600px) 100vw, 600px" /></figure></div>



<h2>Frontal Lobe Dementia Onset</h2>



<p>One main difference between frontal lobe dementia and Alzheimer’s disease is that, on average, frontal lobe dementia first presents itself significantly earlier in life. Frontal lobe dementia symptoms usually appear between 45 and 65 years of age, while the majority of Alzheimer’s cases occur in those over 65.</p>



<h2>Frontal Lobe Dementia Symptoms</h2>



<p>The frontal lobes are responsible for helping inhibition and behavior regulation, so people with frontal lobe dementia will often exhibit strange or unusual behaviors and personality changes. In fact, personality changes and behavior problems are hallmarks of the disorder.</p>



<h3>Personality Changes</h3>



<p>Personality changes that can occur because of frontal lobe dementia include:</p>



<ul><li>Impulsiveness</li><li>Apathy and indifference</li><li>Socially inappropriate behavior</li></ul>



<p>People with frontal lobe dementia may suddenly struggle with binge eating and gambling compulsions because of the impulsiveness associated with frontal lobe atrophy. The indifference associated dementia can cause formerly active and energetic people to become couch potatoes who watch 18 hours of TV each day. Because the personality changes associate with frontal lobe dementia are so pronounced, it is sometimes initially misdiagnosed as mental illness.</p>



<h3>Cognitive Problems</h3>



<p>Frontal lobe dementia does not cause memory loss, but it can other cognitive and neurological problems similar to those caused by Alzheimer’s disease or stroke. These symptoms can include:</p>



<ul><li>Difficulty with speech and language</li><li>Inability to concentrate</li><li>Inability to plan</li><li>Using the wrong object for the wrong task, or at the wrong time</li><li>Movement and balance difficulties</li></ul>



<h2>Diagnosing Frontal Lobe Dementia</h2>



<p>No one test is able to diagnose frontal lobe dementia. Instead physicians are able to use the balance of evidence to diagnose frontal lobe dementia based on their best judgment. Because there is no foolproof test and diagnosis depends on the physician’s knowledge, judgment, and observation of the patient, frontal lobe dementia is notoriously difficult to diagnose in its early stages. Although as the disease progresses, it becomes easier to definitely distinguish it between other disorders.</p>



<h2>Therapies and Prognosis</h2>



<p>Today’s approaches to frontal lobe dementia are palliative, meaning they are focused on easing symptoms, as there is no known cure for frontal lobe dementia or treatments that can delay its progression. The disease inevitably gets worse and in its final stages patients require 24 hour care.</p>



<p>The average survival time after a diagnosis of frontal lobe dementia is six to eight years, although patients have been recorded to live up to 20 years after a frontal lobe dementia diagnosis.</p>


What Is Frontal Lobe Dementia?

About the prognosis, symptoms and treatment of frontal lobe dementia, also known as frontal temporal dementia. 

Frontal Lobe Dementia


<p>Some of the best information regarding trials for Alzheimer’s and dementia clinical surveys is from Trial Match (listed below), a service of the Alzheimer’s Association. Trial Watch has Alzheimer’s and dementia &nbsp;trials carefully selected from ClinicalTrials.gov (also listed below). But here are some other great resources that provide information about the risks of benefits and trials, as well as links to pages to find trials not strictly related to Alzheimer’s and Dementia.</p>



<h2>Clinical Trial Resources</h2>



<ul><li><a href="http://www.alz.org/research/clinical_trials/find_clinical_trials_trialmatch.asp">Trial Match</a><br>A service of the Alzheimer’s Association which helps to match patients and their loved ones with medical researchers who are exploring Alzheimer’s and dementia treatments.</li><li><a href="http://www.comprehensivecd.com/alzheimers-disease-itn-12129/">Miami Jewish Health Systems Alzheimer’s and Dementia Trials</a><br>The acclaimed Miami Jewish Health System is eagerly seeking participants for studies on Alzheimer’s and dementia.</li><li><a href="http://www.alz.org/research/clinical_trials/why_participate_in_clinical_trials.asp">Reasons to Participate in Clinical Trials</a><br>Alzheimer’s patients who participate in trials receive access to free, top of the line medical care and benefit society by helping researchers discover what does and does not work as an Alzheimer’s treatment. Because medical trials are inherently a foray into the unknown, the possible benefits must be weighed against the risks and inconveniences.</li><li><a href="http://www.nih.gov/health/clinicaltrials/">Clinical Trials and You (National Institute of Health)</a><br>Information about the basics of clinical trials, and how to find clinical trials of all types.</li><li><a href="http://clinicaltrials.gov/">ClinicalTrials.Gov</a></li><li>Is a government website that “provides regularly updated information about federally and privately supported clinical research in human volunteers.” It “gives you information about a trial’s purpose, who may participate, locations and phone numbers for more details.”</li></ul>



<figure class="wp-block-image size-large"><img src="https://img.prod.aplaceformom.com/main/uploads/alz/2021/05/trials1.jpg" alt="" class="wp-image-121863" srcset="https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/trials1.jpg 300w, https://img.dev.aplaceformom.com/main/uploads/alz/2021/05/trials1-290x192.jpg 290w" sizes="(max-width: 300px) 100vw, 300px" /></figure>



<ul><li><a href="http://www.centerwatch.org/">CenterWatch</a><br>“Clinical research, including listings of more than 41,000 active industry and government-sponsored clinical trials, as well as new drug therapies in research and those recently approved by the FDA.”</li><li><a href="https://foxtrialfinder.michaeljfox.org/">Fox Trial Finder</a><br>Parkinson’s disease can cause dementia symptoms not unlike Alzheimer’s disease. Michael J. Fox, who has Parkinson’s Disease, has sponsored this trial finder for the Parkinson’s community.</li></ul>


Alzheimer’s Clinical Trials, Studies and Research

Find information about Alzheimer’s clinical trials, including tools to locate trials in your area. 

Alzheimer’s Clinical Trials

The phone number connects you with a local advisor from Alzheimers.net

For more information about memory care options

For Memory Care options

<p>We are compiling information for families who are just learning about Alzheimer’s and for individuals looking for more information about the disease and related types of dementia.</p>
<h2><a href="/clinical-trials/">Alzheimer’s Clinical Trials</a></h2>
<p>Find information about Alzheimer’s clinical trials, including tools to locate trials in your area. <a href="/clinical-trials/">Read more</a></p>
<h2><a href="/alzheimers-dementia-research-centers-organizations/">Alzheimer’s Research Organizations</a></h2>
<p>Find and learn about Alzheimer’s research centers and organizations that support Alzheimer’s research. <a href="/alzheimers-dementia-research-centers-organizations/">Read more</a></p>
<h2><a href="/alzheimers-statistics">Alzheimer’s Statistics</a></h2>
<p>The most up to date numbers about Alzheimer’s and how it impacts people globally. <a href="/alzheimers-statistics">Read more</a></p>
<h2><a href="/caring-for-someone-with-dementia/">Caring for Someone with Dementia</a></h2>
<p>Dementia care is a daunting task, but may not be as challenging as you expect. <a href="/caring-for-someone-with-dementia/">Read more</a></p>
<h2><a href="/difference-between-alzheimers-and-dementia/">Difference Between Alzheimer’s and Dementia</a></h2>
<p>Discover how Alzheimer’s and Dementia are remarkably different. <a href="/difference-between-alzheimers-and-dementia/">Read more</a></p>
<h2><a href="/types-of-dementia/">Different Types of Dementias</a></h2>
<p>Learn about the various causes and symptoms of types of dementia. <a href="/types-of-dementia/">Read more</a></p>
<h2><a href="/national-alzheimers-therapy-directory">Directory of National Alzheimer’s Resources</a></h2>
<p>Explore our directory of additional Alzheimer’s resources for caregivers and seniors. <a href="/national-alzheimers-therapy-directory">Read more</a></p>
<h2><a href="/the-forecast-of-alzheimers-by-state/">Forecast of Alzheimer’s by State</a></h2>
<p>The Alzheimer’s Association reports that the estimated progression rate of Alzheimer’s in the U.S. from 2000-2050 will increase by 193%. <a href="/the-forecast-of-alzheimers-by-state/">Read more</a></p>
<h2><a href="/frontal-lobe-dementia/">Frontal Lobe Dementia</a></h2>
<p>About the prognosis, symptoms and treatment of frontal lobe dementia, also known as frontal temporal dementia. <a href="/frontal-lobe-dementia/">Read more</a></p>
<h2><a href="/guardianship-for-parent-with-alzheimers/">Guardianship</a></h2>
<p>How to obtain guardianship for a loved one with Alzheimer’s disease. <a href="/guardianship-for-parent-with-alzheimers/">Read more</a></p>
<h2><a href="/stages-of-alzheimers-disease/">Stages of Alzheimer’s Disease</a></h2>
<p>Learn about the stages of Alzheimer’s disease from the beginning to its end. <a href="/stages-of-alzheimers-disease/">Read more</a></p>
<h2><a href="/what-is-alzheimers-disease/">What is Alzheimer’s Disease?</a></h2>
<p>Definitions and the latest research about Alzheimer’s Disease. <a href="/what-is-alzheimers-disease">Read More</a></p>
<h2><a href="/what-is-picks-disease/">What is Pick’s Disease?</a></h2>
<p>Pick’s disease is a rare type of age-related dementia that affects the frontal lobes of the brain and causes speech problems like aphasia and behavior difficulties. <a href="/what-is-picks-disease/">Read more</a></p>


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